Menopause and HRT
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To date, the age of menopause appears to be no different in DES exposed women. The relative benefits of hormone replacement therapy (with natural oestrogen and progesterone) have to be considered by all women, including DES exposed daughters. These benefits include alleviation of symptoms such as hot flushes, tiredness, depression and protection against osteoporosis and heart attack and stroke. DES exposed women should not be denied these benefits but as we have no long-term studies available as yet - because DES daughters are only now entering menopause - HRT should be considered with caution.
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Auto-immune diseases
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There has been an increase in the incidence of auto-immune diseases such as thyroid malfunction and rheumatoid arthritis. These are a group of diseases where the body's immune system mistakenly destroys its own tissues (of thyroid gland, joint linings etc). These conditions are not common in the community but there is a slightly higher incidence amongst DES exposed women.
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Breast cancer
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Research is limited on the risks of developing breast cancer for DES daughters, but a 2006 study found a slightly higher risk in DES daughters aged 40 and over. A special DES check-up every year, along with annual clinical breast examination and mammography, once you have reached 40 years of age, is recommended.
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Where to get more information
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The DES Follow Up Clinic
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Suite C, Frances Perry Consulting Suites
2nd Floor, Royal Women's Hospital
Cnr Grattan St & Flemington Rd
Parkville VIC 3052
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Phone: (03) 9344 5077 for an appointment.
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All patients of the DES Clinic require a medical referral from a general practitioner and their Medicare card.
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Women's Health Information Centre (WHIC)
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Royal Women's Hospital
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Phone: (03) 8345 3045 or 1800 442 007 (rural callers)
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Email: whic@thewomens.org.au
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DES Action, Australia
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P.O.Box 282, Camberwell , VIC, 3124
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Web: http://www.desaction.org.au
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DES Action is a non-profit, voluntary organisation which operates as a self-help group for DES mothers and daughters. DES Action offers information, support and lobbying for health issues that affect women.
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Related fact sheets
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Disclaimer
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The Royal Women’s Hospital does not accept any liability to any person for the information or advice (or use of such information or advice) which is provided in this fact sheet or incorporated into it by reference. We provide this information on the understanding that all persons accessing it take responsibility for assessing its relevance and accuracy. Women are encouraged to discuss their health needs with a health practitioner. If you have concerns about your health, you should seek advice from your health care provider or if you require urgent care you should go to the nearest Emergency Dept.
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Last updated Jan 2010. Reviewed Feb 2011
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