Gestational trophoblastic disease registry

The Gestational Trophoblastic Disease (GTD) Registry offers a comprehensive diagnostic, monitoring, treatment and management service for women who have had a partial or complete molar pregnancy or any other form of GTD.

Hydatidiform mole is the most common form of GTD. Molar pregnancies are quite rare, affecting around 1 in 1,000 pregnancies. It is sometimes suspected on early ultrasound or after a miscarriage, when the tissue that is collected or passed from the uterus is inspected. As the condition is unusual and not well known in the community, it can come as a shock for women who are suffering the loss of a pregnancy.

GTD registration

When registered, the patient will receive a pack containing instructions for tumour hCG monitoring. This is usually a blood sample but sometimes a 24 urine collection is recommended. These samples will be analysed at the Women's and the patient will be advised of the results and whether any further testing or treatment is required. Patients do not need to come to the Women's for monitoring.

GTD management advice

Health professionals can call the GTD Registry for advice and information on the management of patients with gestational trophoblastic disease. Note that advice will only be given to health professionals but once registered patients can also access advice from a member of the GTD team.

Clinical inclusion

All women with a known or suspected partial or complete molar pregnancy or choriocarcinoma can be referred by a GP or specialist doctor.

Frequency of clinic

IIf a patient requires treatment for GTD, an appointment will be scheduled for them at the Women's.

Referral

All women with a known or suspected partial or complete molar pregnancy or choriocarcinoma can be referred by a GP or specialist doctor. Please fax the referral form (see Related downloads) to (03) 8345 3539.

Urgent referral

Urgent clinical enquiries will be directed to the Nurse Consultant, Oncology Fellow or Clinical Director. 


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